Keep it Secret! Keep it Safe! Who's in control of your medical data?
The high-tech industry has revolutionized healthcare, ushering in an
amazing new era of medicine, but both providers and patients have
struggled to keep up with changes in how we track healthcare data.
Widespread digitization of medical records has the promise to be a
step forward in the advancement of treatment, but there are several
pitfalls that we must avoid to ensure that patients retain control
over personal data, are empowered to use open formats, and can access
data using FOSS tools.
How much do you know about Electronic Health Records (EHR/EMR)? Do you
have a local digital copy of your family's medical records? How
confident are you that your doctors can and will keep your personal
information private and secure?
This talk will provide an introduction to EHR systems, healthcare
apps, and both open & closed formats for medical data. We'll discuss
legal aspects of this data, HIPAA, genetic rights, and suggest ways to
increase privacy, reduce personal risk, and retain greater control
over who gets to see which of your records (and when!)